All tagged Advocacy

Noah's Journey With Narcolepsy--Guest Post By Lindsay Bryant Jesteadt

 How do you come to terms with your child having an incurable illness?

This week Lindsay Bryant Jesteadt talks about her young son Noah, his journey with narcolepsy and the impact his condition has has on the family. 

You'll want to read this...

Letting Go--One Parent's Approach To Self-Advocacy In Our Children With Narcolepsy

I'm a big believer in advocating for our children who live with chronic illness but there comes a point when we need to let them speak for themselves.

Just recently I was challenged to think more about his through the Youth Ambassador Program that's organized by Narcolepsy Network. Essentially it's about our children being empowered to self-advcoacy, and the benefits are huge.