All tagged Living Optimally with Narcolepsy

Narcolepsy In The Classroom--A Teacher's Perspective On Educating A CWN

There was a time when I thought Mathilda would never be well enough to attend school. In fact, learning was so low down on the list (back when our lives were dominated by hospital admissions and appointments) that I resorted solely to books on tape with the hope that some of the dialogue might, just might, get through to her asleep there on the couch. 

Seven years later however, Mathilda is in 6th grade a small Catholic school in the greater L.A area. She is able to attend every day because of a very specific medical regime, punctual and consistent sleep hygiene (naps), kind-hearted peers, and super supportive teachers . . . 

Newly Diagnosed? How To Begin The Narcolepsy Journey With Insight And Hope

I remember May 24th 2010 well. It was the day a doctor from India told me my 3-year old daughter had narcolepsy.

After 6 months of failed hospital visits and invasive tests to rule out a brain tumor, epilepsy, and-- wait for it--drug abuse, I felt incredibly relieved. That relief was was centered around the the thought "it could be worse. It could be so much worse."